Not all cases of Ehlers-Danlos syndrome are severe enough to make you eligible for Social Security Disability benefits, but Nancy Cavey has successfully represented many SSA applicants with Ehlers-Danlos syndrome. She works to overcome the claims denial by working closely with you and your physician by showing that you:
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Ehlers-Danlos Syndrome and Social Security Disability Ehlers-Danlos syndrome is the name of several inherited medical conditions that affect joints, skin, and other connective tissues in the body. Ehlers-Danlos is usually the result of a mutation or defect in the genes that produce and regulate collagen—the primary protein making up ...
Nov 22, 2018 · Social Security Disability Insurance for Ehlers-Danlos Syndrome. Ehlers-Danlos syndrome “EDS” describes a few genetic (typically caused by a genetic mutation) conditions that cause a number of problems. The mutation is usually found in the genetic code that regulates the body’s collagen, which is responsible for connective tissue in the joints and throughout the body.
Apr 09, 2018 · Social Security Disability and Ehlers-Danlos Syndrome. Written by John Horn. Posted in Blogs, Social Security Disability. Ehlers-Danlos syndrome is a cluster of genetic disorders related to hypermobility. Depending on the type of Ehlers-Danlos you have and the severity of your symptoms, it can be quite disabling — especially as you age.
Disabling Conditions; Ehlers Danlos Syndrome Long Term Disability Claims. The Ehlers-Danlos Syndromes (EDS) is a group of connective tissue disorders that are typically inherited at birth that can result in a wide range of affects and symptoms. EDS is typically known for and characterized by joint hypermobility, excessively stretchy skin and tissue fragility.
Just having a diagnosis of Ehlers-Danlos is not enough to obtain an award of disability benefits. Your attorney must work with your doctor to document not only the medical details of your Ehlers-Danlos, but also the functional impairments that it causes.
People affected by vascular EDS have a median life expectancy of 48 years and many will have a major event by age 40. The lifespan of people with the kyphoscoliosis form is also decreased, largely due to the vascular involvement and the potential for restrictive lung disease.
VASCULAR EDS is the most serious type due to the possibility of a shortened lifespan. Minor trauma can lead to extensive bruising and skin tears. Arterial rupture is the most common cause of sudden death. A 14th type of EDS has recently been discovered but has not yet been officially classified and named.May 16, 2018
Vascular Ehlers-Danlos syndrome is a rare, life-threatening, autosomal dominant variant of EDS, resulting from mutations in COL3A1 gene. Affected individuals are prone to serious and potentially fatal complications, especially vascular, intestinal, and uterine ruptures.Apr 15, 2011
Can I Get Disability For Ehlers-Danlos Syndrome (EDS)? The answer is that Ehlers-Danlos Syndrome (EDS) can be a disabling condition, depending on how it presents. EDS is a genetic disorder affecting connective tissues and causing an array of serious physical problems, ranging from joint pain to cardiovascular issues.
Many of the problems associated with EDS are progressive, meaning that they get worse over time.
Tnxb−/− mice showed progressive skin hyperextensibility, similar to individuals with Ehlers–Danlos syndrome. Biomechanical testing confirmed increased deformability and reduced tensile strength of their skin.Mar 4, 2002
We have pathologically smooth, velvety skin. Expensive creams aren't needed to keep our skin looking young and smooth as we age. Although our joints degenerate and age quicker than our peers, our appearance remains youthful.May 25, 2018
Pain in the abdomen. Frequent headaches. Pain with daily tasks. People with EDS can have trouble using pens and pencils, because holding tightly to something so thin becomes painful.Aug 8, 2013
Although the most common forms of EDS — classical and hypermobile — do not typically cause heart problems, these problems can happen. In addition to weak, easily dislocated joints, and soft, fragile skin, these patients may also have weak blood vessels that are easily stretched or torn.Jul 15, 2020
Hypermobility spectrum disorders (HSD) are a group of conditions related to joint hypermobility (JH). HSD are diagnosed after other possible conditions have been excluded, such as any of the Ehlers-Danlos syndromes (EDS) including hypermobile EDS (hEDS). HSD, just like hEDS, can have significant effects on our health.
EDS is something you are born with but symptoms may not manifest themselves until later in life. It is not uncommon for a genetic condition to first become apparent during puberty, alternatively symptoms can be triggered by a trauma, such as a virus, many years down the line.
Ehlers-Danlos syndrome is the name of several inherited medical conditions that affect joints, skin, and other connective tissues in the body.
Ehlers-Danlos causes connective tissues to be weaker and more elastic. This means that skin may bruise easier or joints may become extremely loose and overly flexible. There are at least ten different types of Ehlers-Danlos, which affect different collagen genes and lead to varying combinations of symptoms. Because of this, Ehlers-Danlos can be ...
Stretchy or saggy skin. Deformities. Muscles and joint pain. Sprains, pulls, and dislocations. Skin that bruises easily. Ehlers-Danlos can also lead to heart diseases and other cardiovascular problems if blood vessel or valve tissue is weakened.
Applying for Social Security Disability with Ehlers-Danlos Syndrome. Like many rare genetic conditions, there is no Blue Book listing for Ehlers-Danlos. However, you may still qualify for benefits if you can match a listing associated with your particular symptoms or impairments.
Tissue biopsies can also be taken to confirm a diagnosis. Unfortunately, there is no cure for Ehlers-Danlos syndrome.
If tissues in your heart or blood vessels are affected by Ehlers-Danlos, you may qualify under section 4.00—Cardiovascular System disorders. In any event, you will only qualify for benefits if your condition prevents you from working for a sustained period of time.
Ehlers-Danlos syndrome “EDS” describes a few genetic (typically caused by a genetic mutation) conditions that cause a number of problems. The mutation is usually found in the genetic code that regulates the body’s collagen, which is responsible for connective tissue in the joints and throughout the body.
Unfortunately, EDS is often misunderstood and dismissed by disability judges and insurance companies. One challenge is establishing the severity of impairment since Ehlers-Danlos can vary so greatly (including in the same person over time).
Pain is a major problem for Ehlers-Danlos patients. Your overly-flexible joints can pop in and out of place far too easily, and arthritis pain can be unrelenting. Your disorder makes treatment difficult because traditional physical therapy and exercises that help others with arthritis can actually make your condition worse.
You can’t get Social Security Disability just because you have a diagnosis of Ehlers-Danlos Syndrome. Because Ehlers-Danlos has a wide variety of symptoms, you have to explain exactly how the disorder affects your life and limits you from working.